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Utopia Talk / Politics / KKKanadian government murders kids!!
Cthulhu
Tentacle Rapist
Sat Mar 10 09:53:58
https://www.google.ca/amp/www.cbc.ca/amp/1.4570152

Tldr, Canadian government pulls a Shrekelli by replacing an affordable life saving drug with one that costs over 300k a year
TJ
Member
Sat Mar 10 10:55:20
I read the article because I was unfamiliar with the rare disorder and did some research.

http://cystinosis.org/what-is-cystinosis/symptoms-treatment

"It is estimated that at least 2,000 individuals worldwide have cystinosis, though exact numbers are difficult to obtain because the disease is often undiagnosed and/ or misdiagnosed."

As sad as the situation is: Numbers affect the effect.

The cost for a slow release to avoid its original deficiencies seems rather extravagant, but I'm far removed from making such a decision. Only the very elite could afford such treatment. hummmmm
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